Guide to the words we use

Doctors and leaflets use many special words. Here is what the words in this app mean, in plain language.

This guide explains words only. It has not yet been checked by a doctor, and it is not advice about your own situation — ask your doctor about that.

Basic words

Epilepsy

A condition of the brain that makes a person have seizures again and again. It is common, it is not contagious, and it is not caused by a curse or by anything the person did. Many people with epilepsy live full lives with the right treatment.

Seizure (also called a fit)

A sudden burst of unusual electrical activity in the brain. For a short time it can change how a person moves, feels, behaves or how aware they are. Most seizures stop on their own within a few minutes.

Trigger

Something that makes a seizure more likely for some people, such as a missed medicine, poor sleep, stress or illness. A trigger is not the cause of epilepsy, and many seizures have no clear trigger. Noting possible triggers helps you and your doctor look for patterns.

Aware or not aware

Whether the person knew what was happening during the seizure and can remember it afterwards. From the outside this can be hard to tell — choosing "Not sure" is fine.

Types of seizure

Focal aware seizure

Starts in one part of the brain. The person stays awake and aware and can remember it. It may be only a feeling (see "Aura"), or movement or tingling in one part of the body.

Focal impaired awareness seizure

Starts in one part of the brain and affects awareness. The person may stare, not answer, or repeat movements such as lip-smacking, chewing or fiddling with clothes. They are often confused afterwards and may not remember it.

Focal to bilateral seizure

Starts in one part of the brain and then spreads to both sides, usually becoming a seizure where the whole body stiffens and shakes. There may be a warning feeling first. In this app, log it as "Whole body stiffened and shook" and mention the warning in the notes.

Tonic-clonic seizure

The kind most people picture. The body stiffens (tonic), then jerks (clonic). The person is not aware, may fall, cry out, bite their tongue or wet themselves. It usually lasts 1–3 minutes, followed by confusion and tiredness.

Absence seizure

A short blank stare, usually lasting a few seconds, sometimes with fluttering eyelids. It starts and stops suddenly and the person carries on as if nothing happened. More common in children, and it can happen many times a day.

Myoclonic seizure

Sudden, very quick jerks of a muscle or group of muscles, like a small electric shock — often in the arms or shoulders, and often soon after waking up.

Atonic seizure (drop attack)

The muscles suddenly go floppy. The head may drop or the person may fall. It is very brief but can cause injuries.

Not sure

It is completely fine not to know the type. Describe what you saw in the notes; a short video helps the doctor most.

Warning signs

Aura (warning feeling)

A warning feeling at the start of a seizure. Doctors count an aura as a small seizure itself (a focal aware seizure). It usually lasts seconds to a few minutes. Sometimes it stops there; sometimes a bigger seizure follows. Many people get the same aura each time — tell your doctor if yours changes, lasts longer or comes more often. To log an aura on its own, choose "Stayed aware" as the type.

Prodrome (feeling "off" beforehand)

Changes some people notice hours or even days before a seizure, such as irritability, low mood, headache or poor sleep. It is not a seizure itself, and not everyone has one.

What an aura can feel like

Everyone is different. Some common examples:

Body feelings
tingling, numbness, sudden warmth or cold, dizziness
Seeing
flashing lights, bright spots, shapes or blurred vision
Hearing
ringing, buzzing, or sounds others cannot hear
Smell and taste
a burning smell or a metallic taste that is not really there
Emotions
sudden fear or panic, or happiness or sadness for no reason
Memory and thinking
déjà vu, familiar places feeling strange, trouble finding words
Stomach and body
a rising feeling in the stomach, nausea, sweating, a racing heart

After a seizure

Recovery period (postictal)

The time after a seizure while the brain recovers. The person may be confused, sleepy, have a headache, sore muscles or feel low. It can last minutes to hours. Stay with them until they are fully back to normal.

Recovery position

Lying on their side, with the top leg bent to keep them steady. Use it once the shaking has stopped — it keeps the airway clear if there is saliva or vomit.

Emergencies

Status epilepticus

A seizure that lasts more than 5 minutes, or seizures that come one after another without the person recovering in between. This is a medical emergency — call for help. That is why this app shows an alert at 5 minutes.

Rescue medicine

A medicine some doctors prescribe to stop a long seizure or a cluster of seizures, often given in the nose or the cheek. Give it only as your doctor's written plan says. You can save that plan in Profile so it shows during an emergency.

Emergency alert time

How many minutes into a seizure this app shows the emergency alert. It is 5 minutes unless your doctor has told you a different time. You can change it in Profile.

Further reading